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Wednesday, 10 September 2008
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Currently Listening
Greatest Hits
By dc Talk
see relatedCameron is so cute...he told me he liked DCtalk and wanted me to run out and buy their cd...his favorite song is Jesus Freak..he loves it...so now I have to hear it day and night...I think I'm gonna freak...if I have to hear it one more time. On another note I am sick with a bad chest cold...and coughing my head off...nothing seems to work to get rid of it....i feel so yucky...this cough just hangs on...this is like the 4th week...so now I think I will go to the doctor and maybe get some anitbiotics or something....I hate going to the doctor too....and I hate taking meds...guess dealing with Cameron and doctor visits and all the meds he's had to take all his life ...I tend to stay away from hospitals and doctors until I just can't take it anymore..so pray for me....I really need a touch of healing not just for my body...but my mind, and spirit as well...even though its been a year this grieving thing takes its toll and I would not wish it on anyone.
Heart Hugs,
Deeana
Tuesday, 09 September 2008
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Its been such a long time
Well its been a year since I posted on here. Cameron is doing well in school...but says he hates it. The school nurse is no help at all...I requested an IEP for Cameron on the first day of school on Aug 18th because his teacher did not know anything about his HLHS. I was upset because everyone was suppose to know who he was and know what to do if Cameron had any issues with his heart while in school. But the school nurse told me she would have to have his Cardiologist send medical info about Cameron and requested a summery of his diagnosis and prognosis and any treatment. Its felt like they didn't believe me when I informed them on his HLHS and Pacemaker do's and don't's...so now she calles and says that the school psyciatris(sp) does not think Cameron needs a IEP so there will be no meeting...which was the purpose of the IEP..to get everyone on the same page and make sure they do not make Cameron do certain physical requirements...and also evaluate him for any learning problems...but now the nurse tells me that his teacher will monitor Cameron for 1 month and let her know if he needs any extra help...thats it...this school is so full of crap....seems like they are just brushing this kid under the rug...I know I want him to live normally...but I want cautions to be in place too. I don't know if he has any learning problem....that is why I requested the IEP...so he can be tested right away....anyway I get upset just thinking of it....nurse said if his teacher says everything is fine with Cameron then no meeting is needed....I swear ....and I usually don't do that...lol ....but I requested the meeting and they don't want one???? what is that. Cameron has a doctors letter that says he must rest when he is tired...and that he must be able to get water anytime....due to having single kidney and being on blood presure meds...and that he must not get dehydrated. He can not do Contact sports or anything with a lot of physical walking especially in the heat....but these people are so dumb..they never read anything. Cameron is so slow at walking and keeping up with the other kids...he is always way behind the class and the teacher needs to keep his eye on him....he is not to walk to the nurses office alone if sick....and yet...there he is at the nurses office alone. I am keeping a log on how well they follow all request....His teacher is still kinda blank when it comes to Cameron...after I gave him all this info on HLHS and his pacemaker....he acts like he has no clue as to how complicated this heart condition is...I am over protective...I know it...so they better watch out for him...thats all I have to say. Well I'm getting off here so I can cool off...Please keep Cameron and I in your prayers....Cameron has a pacemaker checkup on the 30th and that is a two hour drive to see the Cardiologist and it happens to be my daughter who passed aways birthday...the drive will be filled with tears for sure.
Heart Hugs,
Deeana
Saturday, 18 August 2007
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My heart is broken
My daugther was killed in an auto accident on July 27,2007. We are still coming to terms. So suddenly she was taken and this whole month has been like a dream. Her xanga profile that she left behind says it all...even though its been a long time since she wrote on the site..her profile still remains. If anyone would like to read it her user name was Adsecula_Dicax but her real name was Valerie...we called her Val. She was 20yrs old and planning her wedding that was going to take place on Sept 9th. She would have been 21 on Sept 30. We love and miss her so bad and struggle to live each day without her.
Deeana
Tuesday, 28 February 2006
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- Track 3
Currently Listening
Arriving
By Chris Tomlin
see relatedSeems I have been away too long...almost forgot about this website..until I recieved feedback the other day from my post a year ago. Just wanted everyone to know that Cameron is doing fine..he recieved his last heart surgery this past November and got his new pacemaker as well. All in all..God is still watching out for us. Now since this is the my page of Praise Songs and worship...I thought i would post another song that I truely love
Its called .....How Great is our God and if you haven't got this CD yet... of Chris Tomlin's Arriving.....run out and buy it....that was my free advertizing for him. Anyway here are the lyrics to:HOW GREAT IS OUR GOD
The splendor of a King
Clothed in majesty
Let all the earth rejoice
All the earth rejoice
He wraps Himself in light
And darkness tries to hide
And trembles at His voice
Trembles at His voice
How great is our God, sing with me
How great is our God, and all will see
How great, how great is our God
Age to age He stands
And time is in His hands
Beginning and the end
Beginning and the end
The Godhead Three in One
Father Spirit Son
The Lion and the Lamb
The Lion and the Lamb
How great is our God, sing with me
How great is our God, and all will see
How great, how great is our God
Name above all names
Worthy of all praise
My heart will sing
How great is our God
How great is our God, sing with me
How great is our God, and all will see
How great, how great is our GodI could sing this song all day. So it is my song of Praise...
Enjoy.
Deeana
Tuesday, 15 February 2005
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Happy CHD Awareness Day
Today I remember all those little Angels who were born with a heart defect and never made it back home. Today is not only Valentines Day..a day of LOVE but also a day to make others aware of the many babies born with heart defects...and the numbers are changing everyday. Today due to medical advances many of these kids are finally getting to enjoy a somewhat normal life. There are also many who live in a constant fight for their lives. Please remember these children who's hearts are full of love and the journey requires many doctor visits and medicines, and surgeries. As God touched my heart with so much love for my grandson born with Hypoplastic left heart syndrome..which means HALF A HEART. That I needed to share about the awareness of CHD or Congential Heart Defect.
Today Cameron and I baked a cake and made a big heart of cherrys in the middle...as I watched him lick the spoon and bowl, I could help but think how God made this possible. He couldn't have been more normal than anyother child out there. His face was covered in chocolate and I wanted to cry. How beautiful it was. God deserves all the glory..for his tender mercies that I see everyday.
Deeana
ladydeeana
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- Name: Deeana
- Country: United States
- State: California
- Gender: Female
- Member Since: 8/29/2004
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About Me
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At the present, living with and raising my grandson Cameron who was born with a Heart Defect. Praising God for every moment he has given me with this child.. Learning to live by faith and worship God with my whole heart. To encourage others along the way.
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